It has been a long time since we updated this page. Unfortunately, that does not mean Anne is fine.
She came back from Rhode Island at the end of January, still sick.
She has some good days (some pain, some pain meds needed), some great days (no pain, can visit friends) and very bad days (nothing helps, vomiting, etc.) Since the doctors seem to be without any solutions, Anne is focusing on using hypnosis, relaxation techniques, and pure will power to try to live with the pain. Hopefully, the good days will increase in number.
She is still on a feeding tube and does not eat or drink anything orally. She is doing some schooling homebound.
We just take one day at a time.