Well, we were holding off on posting until we had a clear idea of what would happen.
We went to Rhode Island for Anne to receive a cutting-edge therapy for her pain. (Find out more about it here.) The therapy takes at least two weeks. For the first week she appeared to be getting better!
But then she got very sick with an infection and we had to take her to the ER. She had a fever over 104. She is now in the ICU at Hasbro Children’s Hospital in Providence, Rhode Island. After she is fully treated we will begin the therapy sessions again.