A place to find out where Anne is and how she is feeling. Goal: Make this blog obsolete.


It looks like we have a diagnosis: perineal-plastic autoimmune neuropathy.

Basically, it is an autoimmune disease where antibodies attack her gut nerve cells.  If you want to know more about what that means, contact us.  Rosi can explain.

Treatment will require immunotherapy.  The extent and length remain to be determined.

In the meantime, she is doing very well.  Now over two weeks without a hospitalization.  A record for the last 7 months.

She is gradually eating more solid food, gaining strength, and overall getting better.

The immunotherapy will probably require more hospitalizations and travel. In addition, there may be follow-up treatments, depending on how successful it is.

A benefit has been set for March 30.  It will be a fish fry and silent auction.  Contact Claudia Sharp if you want to help.


Comments on: "Diagnosis!" (3)

  1. Great to hear!!!!
    I’m still praying for you Anne.

  2. Diana Dodson said:

    I will be reading up on this. Thank goodness for a diagnosis. Wish I could be there for the fish fry but will be thinking of another way to help.
    Love Diana

  3. Mary Gore said:

    Thank heaven! Always easier to fight something when you know what it is!

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