As we approach day 70 of hospitalization and the 84th day since this all began, here is what we think we know.
Anne suffers from cyclic vomiting syndrome of the adult type and inter-episodic dyspeptic nausea. The two are different, though related, and can possibly feed on each other. In one study, 63% of adults with CVS also had inter-episodic dyspeptic nausea between CVS events.
The trick has been to identify how to abort an episode and, if that fails, manage an episode. In addition, there is always the need to prophylactically prevent an episode. These efforts are complicated because there is no one treatment that works for all cases. Moreover, treating CVS is different than treating inter-episodic dyspeptic nausea and treating adult CVS is different than the more typical, though still rare, CVS in children. Finally, all of these conditions exist with in a CVS-migraine spectrum, and, thus, we are treating migraines as well.
Overall, Anne has symptom-free hours interspersed with extreme vomiting, nausea, and pain. Although this is difficult, it is still less vomiting, nausea, and pain, than when we started. The physician is trying to treat the symptoms before they start but we haven’t yet found the right combination of medications. Anne has, though, eaten some meals without vomit and is able to complete some school work and text friends. We keep praying, working, and waiting.